Publishing Online

I'll Run Again In Heaven

by Scooter Jon scooter
Scooter Jon Freshman scooter
Val,

This is an excerpt from my e-book. I didn't know where to put it on Apsense but I'm sure you can find a place for it.
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This is the story of a ham and egger. A close friend of mine uses that term quite often and his definition of a ham and egger is someone who's out in the real world grunting out a living. I wish I could say I'm rich and famous but I'm not. I'm just like 95% of the population out there grunting out a living with one exception. In 1991 I was diagnosed with Multiple Sclerosis. It's hard to believe it's already been 16 years since my diagnosis. I love to talk and when you're reading this if it seems like I'm rambling from one topic to another I probably am. That's one of my MS symptoms. I call it babbling or rambling. Doctors call it disinhibition.

I love to have fun and I've been told I have a great personality. I'm very honest and trustworthy. I would give the shirt off my back to someone that needed it. This July will my 16th diagnosis anniversary and I'm still out there grunting! The only difference is now I do my grunting behind a desk. At times I can get down but I don't stay that way very long. There is so much to do in life. If you can get over the fact that you're going to be doing those things sitting down helps you accept your disease. In my e-book I want to explain MS and some of my MS symptoms. I also want to tell you about my businesses that I'm still able to do. It's very inexpensive to get started and although I'm going to market it to everyone I'm especially going to target it towards disabled people.

I'm now 49 and I can trace my symptoms back to at least 1980. I've had this disease in my body for half of my life. I remember when I was a little boy growing up in Rochester, Minnesota. A public service announcement on TV (this was the 60's) showed people in wheelchairs with the tag line, "MS, the crippler of young adults". I don't think that tag line would work well these days in our politically correct world but back then it was OK. I myself was diagnosed at the age of 33. It's ironic that I now have the disease and I can still remember that public service announcement 40 years ago.

As my body deteriorates right in front of my eyes I have to laugh at myself at the things I have trouble doing that were once so easy for me. An example would be sweeping my kitchen floor. I have difficulties bending over now. I sit on a chair and scoot around my kitchen sweeping. The county now pays for a cleaning lady to come in every two weeks to do the heavy cleaning so I don't have to scoot too much. One thing I've learned is there is always a solution to get things done. I used to be a pretty good athlete and at times it bothers me that I can't do simple things anymore. Bending over to pick up a pair of socks takes some thinking but it can be figured out.

When I finally went in to see a neurologist in 1991 I was unsure what the heck was wrong with me. I had eyesight problems when I jogged, numbness and tingling all over my body, I was having trouble urinating, I wasn't sleeping too well, I had a slight limp and a myriad of other things happening to my body. What could be wrong with me I asked myself? It had taken me a year and a half to get in to see an eye doctor and it would be another 3-6 months before I finally had the diagnosis I was looking for. Believe it or not by the time I got my diagnosis I was actually relieved that I had multiple sclerosis! I didn't know what course it would take but at least I had a name for all my symptoms. I also knew that I didn't have something more serious like cancer, a stroke, ALS, or any other major problem. I had been on a roller coaster ride for over two years wondering what was wrong with me but now I knew!

In the past three years my MS has taken my balance and walking. I can still walk around my apartment with the help of a walker. But in the past two months I'm finding myself leaning on walls, chairs, my kitchen table and desks more and more. I ride my scooter 100% of the time outdoors. This takes some mental adjusting but it can be done. I also suffer from severe fatigue which can come on at anytime and anywhere. I now consider my fatigue as more of a problem than my walking. I will have more articles about my disease in the future.


Jon L. Wegner is a resident of North Dakota. He lives in a small town close to Fargo. He can be seen everyday scooting around his little town that he now calls home. Jon makes his living writing on the internet and affiliate marketing. You can find his website and e-book at www.disabiz.com and his top affiliate program at http://www.scooterjon.com/pips.html
Jun 18th 2007 10:38

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Comments

Barbara Eyre Advanced   
Jon -

A very inspiring story ... I applaud you on your positive outlook and perseverance.

While my ailment is not as serious as MS, I know exactly what you're going through. I suffer from Fibromyalgia and Chronic Fatigue Syndrome. I haven't been "officially" diagnosed due to lack of money and health coverage to pay for the necessary testing, but several doctors have said I have it and from my own research, I do have it and have had it for years. I also have a damaged lower lumbar (one of the causes of my FMS/CFS). I just turned 34 years old.

I, too, have a hard time with basic housework. My husband work in the furniture factory and he's suffering from his own aches and pains (body is wearing down from the work). So, I do the housework since I do not work outside the house.

I am SO with you on the fatigue part. I think that is the worse than the chronic pain in the end. I can sleep and sleep and wake up more exhausted than when I went to bed. Fatigue can wear you out and make you feel miserable. And keeps you from doing even the most basic of activities. Heck, sometimes it's so bad that reading seems like a monumental effort! Now THAT's bad!

People wonder how I keep going without pain meds or any other form of treatment. When you don't have the money nor the health coverage, you just keep going. You have to persevere. Life goes on ... and so must you.

Jon ... HUGS to ya! Montel Williams (Talk Show Host) suffers from MS and he's an inspiration also ... works out, researches all forms of treatment, and keeps persevering.

~Barbara

Jun 18th 2007 11:50   
Valerie Hasara Magnate I   Marketing, Web Designer, Owner
Thanks for sharing Jon

Jon is a long time subscriber of mine at OyesUcan ezine. I went through his eBook about a year back.

It is good to see you are still doing well with it and I think this is a great group to share it with.

Valerie

Jun 21st 2007 09:22   
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